April 29, 2006

Just a quick update for everyone: we did not leave the hospital until close to 6:00 on Thursday evening. I got a lesson from the home health nurse about how to administer Leah's medications. That means that I am the home health nurse essentially. I now administer her cefapime three times a day and her one other antibiotic one time each day. It really is not hard, and Leah even has the hang of it enough that I hook the medicine into her tube and she pushes it in. She is rather proud of being able to do it and it probably feels good to have a bit of control over a few things in her life. Still, I feel like we are focusing on medicines and things more and more - especially our first night home when we had to do medicines from the hospital, our home medicines, and her last GCSF shot.

Friday was a rainy day here. Leah had school with her teacher Mrs Larson for an hour and then a good, long nap. Last night we all went over to my brother and sister-in-law's to see the new baby. Leah got to hold her first and grinned the entire time. We have quite a few pictures of this. And Chloe also held her a bit and enjoyed that, too. In fact, Drea was such a hit, that she had to make a visit to our house today and the girls both held her some more and Leah fed her a bottle. We slept very, very late today (9:30 AM) which is unheard of for us, but it felt great. I almost thought we would not need a nap, but no such luck. And, even though I wondered how Leah could be tired, I fell asleep, too. Leah still has a big line-up of activities tonight: making cookies at Grandma Kathy's, a trip to Dairy Queen, and a visit to Heather and Matt's. We tried to explain that it is already 7 PM so perhaps we could not do it all, but she is not one to want to miss out on a single thing, so Chris is running them to my parents for 45 minutes while I blog and then go to the store.

Leah's new food is cinnamon rolls. We had a wonderful meal brought to us last night by the Epleys and dessert was a pan of cinnamon rolls. Just Thursday morning Leah had tried her first one and was enjoying it, so this treat had perfect timing. Unfortunately Leah laid claim to the entire pan. She is also enjoying Pizza Peddler pizza quite a bit, too. We are just glad she is eating.

Since we do have a long list of activities yet this evening I need to run to the store. Our next chemo. treatment is on Friday. As always, we ask that you pray, pray, pray for lower AFP numbers and for her chemotherapy to kill all the cancer cells in her body quickly.