April 3, 2006

Today began at 6 AM when the surgical residents rounded on Leah. It was still dark out and I was trying to convince Leah that it was still nighttime, but how believable am I when the doctors are there to poke on you? After seeing her they immediately decided she no longer needed the monitors and we got to take the electrodes off and the pulse oximeter on her finger. So, all we have now is the port that they are actually happy to lock off for us so we can walk around without any extra equipment.

I did notice that Leah had managed to wet through her pull-up, pajamas and bedding-and my pajamas as well. This I will fully take the blame for. Each time she told me she needed to use the bathroom last night I told her to use her pullup since she had so many wires hooked up it would have been difficult to get to the bathroom. Add to that the fact that she cannot walk on her own and I have the IV pole to push, too, and the pull up sounded like a great plan. Always devious, Leah decided not to have her bedding changed until 7 when her James came on shift. Unfortunately for us James got out of this treat since he was on his way downstairs to work today. Leah was so proud of herself, too.

Chris and I took Leah in the wagon to the library which she enjoyed. She did not nap at all today and is quite tired, but we have been happy that she is up a bit more. My parents came for a 30 minute visit to drop off Grandma Kathy cookies (although Grandpa made this batch, I think) and in the span of that visit Leah threw up twice. So, we are not planning on coming home tomorrow or Wednesday like we dreamed of. She has napped and seems better tonight after having some Tylenol. We have even heard her pass gas, which is probably too much information, but important for us if we ever plan on leaving.

Tonight Chris managed to sneak out with James to The Vine to watch the basketball game. I was attempting to watch the game, but Sesame Street Christmas is much more important, so that is what we are viewing now.

In addition to all the prayers for Leah, we ask that you remember the family of Bryce and Cyndi Davis in your prayers as well. Their 20 month old daughter Courtney passed away yesterday after an 8 month battle with cancer. Although we did not know them well, we were often here for treatments at the same time, and enjoyed watching their beautiful daughter playing in the lounge or at activities with Leah. We have followed Courtney's battle via their web site: www.carepage.com page name: courtneydavis, and have been inspired and amazed by their continued faith in God and belief in His plan for Courtney.