May 1, 2006

Happy May Day! We have had a busy day. Somehow it has now become difficult to get up early anymore, and the best we could do was to be out the door by almost 10:00 this morning. Chloe went to daycare, Leah and I went to Covenant for blood work and took our friend, Heather, along. Leah's counts still look good- her platelets which were 28,000 on Thurs. when we left have recovere to 227,000 today. Her white count looks fine and so does her hemoglobin- 9.9. So, we are set for chemo. on Friday. On Thursday we have to have her port reaccessed to prevent infection and have labs drawn one last time.

After blood work we ate at the Olive Garden-one of Leah's favorites right now. We also had to make a Target stop to get some more pretzel chunks and spaghetti frozen meals. Barnes and Noble was also on our agenda. By the time we got home we were ready for a nap, but had to wait for her cefapime to warm up for 30 minutes before giving it, so read the new books and then napped. By the time we got up Anna and Baby Drea were here for a visit. Leah was all over that and even got to feed her a bottle. Leah has done a bit of cooking, some playing with her babies and kitchen while directing Chloe's activities. We are almost ready to hook her up for her hour long antibiotic session, which is too bad, because she is very busy right now.

Chloe is finally acting like she is potty trained. We have had two whole days of using the big potty. She does manage to tell us, "I go potty really bad," as she makes a beeline for the bathroom. This is a huge step in the right direction for her. I commented on Saturday that the diaper fairy might come and take the diapers and pullups away. This did happen to Leah a few years ago. Chloe has brought that up numerous times and appears quite worried this might happen to her.

Tomorrow I am working in the afternoon. Sometimes it is hard to get excited to go with everything that is going on, yet just the other day I was at work and was so grateful to have a job that I do enjoy, and hope to enjoy even more in the future when I can go every single day. I don't think I will complain any time soon about getting to put in a full work week and have a normal life.

Please, please pray for a lower AFP--a dramatic decrease in this number and for chemotherapy to continue to work without Leah developing a resistance to it. I am almost certain they will check this number again-something we want to know, yet don't want to know.